Jesy Nelson opened up about raising twin daughters, Ocean Jade and Story Monroe, in her upcoming Prime Video documentary
Jesy Nelson will share the heartbreaking truth behind her twins’ diagnosis in a new documentary (Image: Instagram/ @jesynelson)
A poignant scene takes place in a spare bedroom of a new mother Jesy Nelsons home. The room is divided between medical supplies needed to feed her twin girls and toys they cannot enjoy.
The ex-Little Mix member welcome Ocean Jade and Story Monroe Nelson-Foster last year. The twins were subsequently diagnosed with spinal muscular atrophy, a rare condition that causes muscle wasting.
A revealing documentary features Jesy’s mother, Janice, showing the camera crew around the spare room, saying: “This is actually quite organized, but it’s all their stuff they can’t use and all their medical stuff, their feeding tubes and stuff, but it upsets Jesy if she sees it downstairs, so we keep it up here.”
Holding up a brand new cuddly elephant rocking chair, she continues: “These are all things we bought as toys and nothing was suitable because everything has to be specialized because of their spine.
“I said, ‘You should donate them to the hospital and things they need.’ Hopefully someone else will benefit from them,” reports the mirror.
The program Jesy Nelson: Life Changing talks about her mission to ensure universal newborn SMA screening across the UK.
The 35-year-old pop star is calling on the public to support a petition that gathered enough signatures to warrant parliamentary discussion. MPs are due to vote on the matter this month.
The documentary captures Jesy traveling to Scotland on March 23 this year, which marked the day health authorities introduced routine SMA testing for newborns.
Embracing one of the health professionals performing the screening, Jesy is thrilled with the results, though she admits the moment is bittersweet—this straightforward test could have gotten Ocean and Story diagnosed at birth and treated right away, rather than months later, when more damage had been done.
She tells the doctor, “These babies are going to have a different life than our children, it’s amazing what you’re doing.”
As Jesy leaves the clinic with tears streaming down her cheeks, she says, “I want to be sad, but part of me just feels angry. I know it’s amazing, but it’s crazy at the same time.
“I feel so much anger too. It’s just frustrating.”
The documentary shows Jesy’s twins using specialized seating and undergoing therapy in the hope that they will eventually be able to walk.
But they currently struggle with bottle feeding at times, requiring Jesy to resort to tube feeding during mealtimes.
Looking back at the documentary’s conclusion, Jesy reflects: “In the beginning, I felt like I would feel that sadness and that heartbreak for the rest of my life. But the pain is lessening. When something like this happens in your life, it puts everything into perspective. There’s a reason this happens, you know.
“There is this whole community that has fought for years to be seen and heard so that no other family has to go through this again. This is why. The girls’ diagnosis has become my normal now. They are the reason I now feel like I have a purpose and they give me strength every day.
“They give me a reason not to be sad. Because I’m, how can I be sad when you’re going through all this and they’re still smiling?”
The documentary comes to a heartwarming close as the twins mark their first birthday, with Story uttering “Mama” for the very first time.
Born in May 2025, Jesy and her partner, Zion, remained a couple through the first six months, but have since split up.
Opening up, Jesy said: “We’re still moving forward. There’s no bad feeling. My main priority is them, so I just want to be the best mum I can be.
“I want the best energy and I want to be positive. We both handled this situation very differently, so I decided we would be better off apart.”
Jesy Nelson: Life Changing will be shown on Prime Video in July.
